RESUMEN
BACKGROUND: A recent dialogue in the field of play, learn, and teach outdoors (referred to as "PLaTO" hereafter) demonstrated the need for developing harmonized and consensus-based terminology, taxonomy, and ontology for PLaTO. This is important as the field evolves and diversifies in its approaches, contents, and contexts over time and in different countries, cultures, and settings. Within this paper, we report the systematic and iterative processes undertaken to achieve this objective, which has built on the creation of the global PLaTO-Network (PLaTO-Net). METHODS: This project comprised of four major methodological phases. First, a systematic scoping review was conducted to identify common terms and definitions used pertaining to PLaTO. Second, based on the results of the scoping review, a draft set of key terms, taxonomy, and ontology were developed, and shared with PLaTO members, who provided feedback via four rounds of consultation. Third, PLaTO terminology, taxonomy, and ontology were then finalized based on the feedback received from 50 international PLaTO member participants who responded to ≥ 3 rounds of the consultation survey and dialogue. Finally, efforts to share and disseminate project outcomes were made through different online platforms. RESULTS: This paper presents the final definitions and taxonomy of 31 PLaTO terms along with the PLaTO-Net ontology model. The model incorporates other relevant concepts in recognition that all the aspects of the model are interrelated and interconnected. The final terminology, taxonomy, and ontology are intended to be applicable to, and relevant for, all people encompassing various identities (e.g., age, gender, culture, ethnicity, ability). CONCLUSIONS: This project contributes to advancing PLaTO-based research and facilitating intersectoral and interdisciplinary collaboration, with the long-term goal of fostering and strengthening PLaTO's synergistic linkages with healthy living, environmental stewardship, climate action, and planetary health agendas. Notably, PLaTO terminology, taxonomy and ontology will continue to evolve, and PLaTO-Net is committed to advancing and periodically updating harmonized knowledge and understanding in the vast and interrelated areas of PLaTO.
Asunto(s)
Aprendizaje , Consenso , Humanos , Encuestas y CuestionariosRESUMEN
RESUMEN Se reporta un paciente con síndrome de Frasier: nefropatía, disgenesia gonadal y daño renal progresivo y severo durante la infancia. El síndrome de Frasier es una entidad poco frecuente, que ocasiona enfermedad renal crónica terminal, por lo general, en adultos jóvenes, segunda o tercera décadas de la vida. La nefropatía se manifiesta con proteinuria, de inicio en la infancia, ocasionalmente con síndrome nefrótico, siendo la lesión histológica característica una glomeruloesclerosis focal y segmentaria, resistente al tratamiento con corticoides y/o inmunosupresores. La causa genética del síndrome de Frasier corresponde a mutaciones del gen supresor del tumor de Wilms o gen WT1 localizado en el brazo corto del cromosoma 11: Cr11p23.
ABSTRACT We report the case of a patient with Frasier syndrome: nephropathy, gonadal dysgenesis and progressive and severe kidney damage during childhood. Frasier syndrome is a rare disorder that causes end-stage chronic kidney disease, usually in young adults -second or third decades of life. Nephropathy presents with proteinuria, beginning during childhood, occasionally with nephrotic syndrome; its characteristic histological lesion is a focal segmental glomerulosclerosis, resistant to treatment with corticosteroids and/or immunosuppressants. Frasier syndrome is caused by mutations in the Wilms' tumor suppressor gene, or WT1 gene, located on the short arm of chromosome 11: Cr11p23.
RESUMEN
Se comunica un caso de hidrotórax agudo derecho en un adolescente de 13 años con Insuficiencia renal crónica terminal (IRCT) en Diálisis Peritoneal Crónica Ambulatoria (DPCA) de sostén. Es una complicación poco frecuente, siendo en nuestra experiencia en el Programa de DPCA del Hospital del Niño Jesús en 12 años de duración, el primer caso. Describimos su evolución, diagnóstico y resolución
A case of right acute hydrotorax is reported in a 13 years old boy with terminal chronic renal failure in CPD (chronic peritoneal diálysis); it is a rare complication and in our experience in the chronic peritoneal dialysis program in Hospital del niño Jesus, Tucuman, in 12 years of duration is the first case. We inform the evolution, diagnosis and resolution.
